Hospital Apologizes to Mia’s Family

The Children’s Hospital of Philadelphia (CHOP) has issued a statement of apology to the parents of Amelia “Mia” Rivera. This apology is not to be taken as an indication that the hospital has made the decision to give Mia the kidney transplant she needs. It is probably more to quell the growing controversy that started after Mia’s mother wrote on her blog about their first meeting with a doctor. If you have not been following this story, then allow me to catch you up about it. Amelia Rivera is three years old. She goes by the nickname “Mia”. She has … Continue reading

Special Needs Blog Week in Review – January 29 – February 4, 2012

Parents of children who have special needs are busy. You might not have time to read over the Special Needs Blog every day, to see what is new. Instead, you can check out the Special Needs Blog Week in Review and quickly discover what you might be missing. The Special Needs Podcast Roundup went up on January 30, 2012. Some highlights include: CNN’s Dr. Gupta explaining the mystery illness in Texas, and The Coffee Klatch episode with Dr. Allen Frances discussing the changes in the DSM-V. What is Trisomy 18? Rick Santorum’s youngest daughter has Trisomy 18. She recently ended … Continue reading

Kidney Transplant Now a Possibility for Mia

A few weeks ago, the Children’s Hospital of Philadelphia denied a kidney transplant for Mia Rivera. Her story sparked interest from across the internet. Now, the hospital is willing to consider the transplant. Amelia Rivera, who is called “Mia”, is three years old. She has Wolf-Hirschhorn syndrome. It is a chromosomal disorder that is caused by a partial deletion of the short arm of chromosome 4. This is the type of disorder that an infant is born with, (and not something that can develop later on in life). Children who have Wolf-Hirschhorn syndrome tend to have wide spaced eyes, a … Continue reading