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10 Things about Cystic Fibrosis You Don’t Know

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May is cystic fibrosis awareness month. Until my daughter was diagnosed at birth with CF, I had no idea what the condition was. And while most children are now being diagnosed through newborn screening, there are still many children out there who are ill with parents struggling to get a correct diagnosis. CF presents differently in each patient, but most will have frequent respiratory illness, trouble gaining weight, foul smelling stools, and salty tasting skin. Here are some little known facts about CF. 1. Nearly 1,000 new cases of CF are diagnosed each year. 2. Everyday a baby is born … Continue reading →

Cystic Fibrosis – It’s Genetic

Sometimes, if you do not know anyone who has a particular type of health condition you may not realize just how common it is. Today, I learned that Cystic Fibrosis is the most common serious genetic disorder that affects people of Caucasian descent in the United States. Children of other ethnic origins are sometimes born with Cystic Fibrosis, but these children are far fewer than the Caucasian children that are born with the condition. Genetic disorders can be inherited in a few different ways. Cystic Fibrosis follows an autosomal recessive pattern, which means that if both parents pass that recessive … Continue reading →